Irish Health Research Forum (IHRF)

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Irish Health Research Forum (IHRF)

By Health Research Charities Ireland

Date and time

Thu, 16 May 2019 09:00 - 13:00 GMT+1

Location

The Wood Quay Venue

Dublin City Council Civic Offices Wood Quay D08 RF3F Dublin 8 Ireland

Refund Policy

No Refunds

Description

Theme: Data Protection and the Health Research Regulations -
Finding a Way Forward


In November 2018, the Irish Health Research Forum held an event on the theme of ‘GDPR and Health Research: Stakeholder Voices’. This over-subscribed meeting facilitated vigorous and useful discussion on a challenging topic. The outcomes were captured in this widely used meeting report which includes ten recommendations relating to data protection and health research in Ireland.


On May 16th we will once again address this pressing topic. The event will aim to capture the perspectives of those most affected by the recent changes to legislation and to assess progress since the last event. Join us to contribute to discussions and to ensure your voice is heard by decision-makers.

On the day, attendees will hear from:

  • Dr Teresa Maguire- Head of Research Services Unit, Department of Health

  • Dr. Emily Vereker - Programme Manager, Health Research Consent Declaration Committee (HRCDC)

  • Caitriona Dunne - Patient Advocate and Head of Advocacy, Fighting Blindness

  • David Murphy - Assistant Commissioner, Consultation Section, Health and Voluntary Sectors, Data Protection Commission

  • Dr Suzanne Bracken - Translational Research Manager, Clinical Research Development Ireland (CRDI)

  • Prof Gerry McElvaney- RCSI/ Beaumont Hospital & President Irish Academy of Medical Sciences

The IHRF is managed and funded by the Medical Research Charity Group (MRCG), a not for profit umbrella organisation of health research charities and patient organisations. A small fee is being charged to assist the MRCG in covering the costs of the Forum.

Organised by

Health Research Charities Ireland (HRCI) is the national umbrella organisation of charities engaged in health, medical and social care research, collectively representing over 2 million people in Ireland. We champion our members’ interests, to enhance the environment for health research in Ireland. We empower them to realise our shared vision of improving lives through impactful research.

We offer our members the potential for matched research funding through the Joint Funding Scheme, run in partnership with the Health Research Board. We also run the Irish Health Research Forum, bringing together all stakeholders to improve health research in Ireland. www.hrci.ie

The Irish Health Research Forum, which is run by HRCI, brings together all stakeholders nationally to positively influence health research. The Forum considers key health research issues at two events every year and produces widely used reports and recommendations. The events are constructive and inclusive, with benefit to patients and the public being at the heart of all activities.

As an independent organisation, representing 45+ charities and with a strong patient-focus, HRCI is ideally placed to bring people together to tackle the big issues in health research and to bring about change. We are supported in all Irish Health Research Forum activities by an exceptional and diverse Steering Group of leaders. For more information see https://hrci.ie/irish-health-research-forum/

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